Asking Eric: After dementia diagnosis, friends disappeared
Dear Eric: I was an attorney when I started having memory problems at age 65. I retired and subsequently learned that I had a devastating rare dementia with a very short lifespan. Instead of providing me support, my friends disappeared from my life, at the time I needed them most. Friends may rally around you when you have cancer, driving you to chemo treatments, dropping off food and other things to support you; when you have dementia, everyone just disappears.
I’ve always been a sociable person and I’m missing that so much, but I have no idea how or where to start. Any ideas?
– Left By Friends
Dear Friends: People sometimes don’t know what to do or say when confronted with illness, but that’s no excuse for your friends’ behavior and I’m sorry. The Alzheimer’s Association (alz.org) has a wealth of resources for people with dementia, including support groups, both online and in-person. Being able to talk with others about what you’re experiencing and feeling will help with isolation.
This also might be a time for you to explore new volunteer opportunities or social groups that have nothing to do with dementia, depending on your care plan and abilities. You are a person who is worthy of connection, with a wealth of experiences and knowledge from which others can benefit. Your company would be welcomed at a senior center, a local outing group or an organization that aligns with your interests and values. If you have anxiety about navigating these spaces with dementia, or need accommodation in order to feel safe, please don’t hesitate to reach out in advance and talk to a group leader about how you can participate most comfortably.
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Send questions to R. Eric Thomas at [email protected] or P.O. Box 22474, Philadelphia, PA 19110. Follow him on Instagram and sign up for his weekly newsletter at rericthomas.com.